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Patient Data-Ownership Movement Launched

Hellen by Hellen
April 15, 2021
in Latest News

EHR Data has been hard at work for the past couple of years in developing a global healthcare database on the Bitcoin SV blockchain. Bitcoin SV provides transparency, immutability, scalability, security and accessibility of data to platforms and applications being built on it. Furthermore, the Bitcoin SV network boasts of an economically incentivized system that allows for low-cost microtransactions and big data.

Because of these Bitcoin SV features, EHR Data has found a partner to build their global healthcare database, the core function of which is to give back ownership of personal health data to individuals, as well as provide all stakeholders in different industries with real-time access to the same healthcare data. This, in turn, promotes interoperability between various healthcare agencies, whether public or private, across states and countries—a need that has been highlighted because of the current opioid crisis and coronavirus pandemic.

“We believe the patient owns their own healthcare data. And we’re taking all the healthcare data silos that exist in the United States, and we’re combining that into a single silo. And in doing that, what that allows us to do is to track all medical services across all those different industries…. Being a single source of truth and all of the patients’ data being in one place, what we’re going to be able to offer is that this is going to be a global solution—that’s why we call it a GPR, Global Patient Record,” Ron Austring, EHR Data’s Chief Scientist, explained during an in-depth panel discussion on the future of healthcare.

To jumpstart this global movement, the EHR Data Wavemakers, a campaign to create awareness, educate and empower individuals to own their personal health data was launched. Central to this movement is the digital campaign My EHR Story, which encourages all people with experiences related to health data failure and miscommunication that negatively affected treatment and health to share their stories on social media using the hashtag #myEHRstory.

“We must get people fired up about owning their data so that they can be empowered to own their health. It’s going to take a groundswell of people demanding change—making waves—to change the tides on data ownership and access,” EHR Data EVP Tracy Hill said in a press release.

“Times are changing, and a greater focus is being placed on interoperability and the patients’ absolute right to increased access to their health data. We will spearhead and shepherd this process; it’s high time that there was a centralized location for healthcare data, controlled and permissioned by the patient that they and their team of providers can access at any time,” Austring added.

For instance, a cancer institute can compile a list of cancer patients and ask them for permission to use their medical history for research. The patients who agreed to let the institute use their data will also be compensated accordingly. This is what it means for data to be monetized and for individuals to become a part of an economically incentivized system. In this type of system, institutions also benefit by having easy access to broader and more detailed information about a certain disease, which will help them in creating vaccines, for instance, and maybe even a cure for cancer.

To know more about EHR Data Wavemakers and how to be a part of this movement and share your story, visit https://ehrdata.com/wavemakers.

Featured image: pexels.com (Chokniti Khongchum)

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